This is the most vulnerable thing you have written, and it broke my heart to read how you really feel. I am so proud of you and of the person you have become in these last years, and I am glad I could be by your side, supporting you. You will get through it; if not, at least we have each other.
The research rests in CFS/ME with Long Covid. I am sorry to hear you are struggling. 20+ years ago I was rendered bedbound for about 1.5 years. I managed to get out of the bed but life as I knew it NEVER returned. The establishment does not really understand it, it is ripe with well intentioned but unmeaningful abuse around this. Maybe not so much with Covid, but absent tangible evidence and proof we're all pretty much relegated to head case. The invalidation cost me the support of family and friends, some who in so many words might not have said it to my face but also considered me 'lazy' 'whining' and 'malingering'. Trying my best to mask, to fit in, I pushed harder than I should have. I am now at irreversible 28% ANS. Keep a sharp eye on your ANS. You have to be really strict with your pacing. Do not overdo it. You want to keep what you have. Your good days will indeed fool you. 20+ years of doing more than I ever should have has found me at risk of bedbound once more. You don't want that. Protocol at this juncture is: "Choose between bathing and eating" there is no provision for actual cooking. I don't have anyone to help me, I have no choice. 20 years in looking back, what I thought was 'improvement' was conditional and I missed the mark. STOP before you begin to feel the symptoms. Acceptance for me was hard, but I would never want anyone to realize a gain then throw it all away. This is playing for the LONG GAME. Many blessings to you. Please take good care of you, it's real, it's not all in your head.
I really respect how open and vulnerable you were in this. That kind of honesty takes guts, and you didn’t try to make it sound prettier than it is.
After reading, I checked out Serapex and took the Creator Archetype quiz. Honestly, it was solid. It actually helped me see how I think and create, not just who I am on paper. It gave me a few things I can use to shape what I’m working on next.
I appreciate the work you’re doing. Both the writing and the project feel authentic.
I'm really sorry to hear about your situation and I hope over time your body recovers. I think your mindset, at least, is in the right place. Appreciate what you can, do what you can, and don't lose yourself.
“I wish I could tell you life will eventually return to exactly how it was before.” This line hits hard. We'll torture ourselves thinking things will go back to the old ways when the world is in constant rotation.
This is the most vulnerable thing you have written, and it broke my heart to read how you really feel. I am so proud of you and of the person you have become in these last years, and I am glad I could be by your side, supporting you. You will get through it; if not, at least we have each other.
The research rests in CFS/ME with Long Covid. I am sorry to hear you are struggling. 20+ years ago I was rendered bedbound for about 1.5 years. I managed to get out of the bed but life as I knew it NEVER returned. The establishment does not really understand it, it is ripe with well intentioned but unmeaningful abuse around this. Maybe not so much with Covid, but absent tangible evidence and proof we're all pretty much relegated to head case. The invalidation cost me the support of family and friends, some who in so many words might not have said it to my face but also considered me 'lazy' 'whining' and 'malingering'. Trying my best to mask, to fit in, I pushed harder than I should have. I am now at irreversible 28% ANS. Keep a sharp eye on your ANS. You have to be really strict with your pacing. Do not overdo it. You want to keep what you have. Your good days will indeed fool you. 20+ years of doing more than I ever should have has found me at risk of bedbound once more. You don't want that. Protocol at this juncture is: "Choose between bathing and eating" there is no provision for actual cooking. I don't have anyone to help me, I have no choice. 20 years in looking back, what I thought was 'improvement' was conditional and I missed the mark. STOP before you begin to feel the symptoms. Acceptance for me was hard, but I would never want anyone to realize a gain then throw it all away. This is playing for the LONG GAME. Many blessings to you. Please take good care of you, it's real, it's not all in your head.
I really respect how open and vulnerable you were in this. That kind of honesty takes guts, and you didn’t try to make it sound prettier than it is.
After reading, I checked out Serapex and took the Creator Archetype quiz. Honestly, it was solid. It actually helped me see how I think and create, not just who I am on paper. It gave me a few things I can use to shape what I’m working on next.
I appreciate the work you’re doing. Both the writing and the project feel authentic.
Thanks James that really fills my heart. I'm glad people still find this post.
I love to see the Archetype Navigator helped you. If you have any question just let me know.
I'm really sorry to hear about your situation and I hope over time your body recovers. I think your mindset, at least, is in the right place. Appreciate what you can, do what you can, and don't lose yourself.
Thanks for your words, means a lot to me.
“I wish I could tell you life will eventually return to exactly how it was before.” This line hits hard. We'll torture ourselves thinking things will go back to the old ways when the world is in constant rotation.